Chronic Illness Is Not For The Weak
My surgery has been postponed. Unfortunately, I developed some infections on different places on my body. My GP felt that it was not smart to have surgery in my condition. So, my surgery will be one month from now. It’s kind of depressing because this will push my recovery forward into the spring season. This […]
Confusing Appointment
Sometimes, going to appointments can be so confusing! My ultrasound appointment was not what I thought it would be. I feared that the rash on my breast might be Inflammatory Breast Cancer. When my GP saw it, she immediately suggested that I get it scanned. I’ve been getting mammograms for many years. Because of dense […]
My Doctor’s Appointments Are Ridiculous
Today was ridiculous! I had two out-of-town appointments, which started earlier than I like. My goal is to always to get afternoon appointments, because it is so hard for me to get going in the morning. I took this appointment because the office wanted to rearrange things because of heavy snow. Today was freezing, […]
2025 Rare Disease Day
Rare Disease Day is a day that is exciting to me, because there is such little knowledge of rare diseases in the United States. A rare disease has many definitions, but the most important one to me is that rare disease’s get no research. Without research, there can be no chance of breakthrough treatments. Those […]
Good Results & Hope
I have had a very interesting past few days. I had a breast biopsy, even though the doctor told me that it was probably fine. But, probably isn’t something I can live with. I have enough problems, and I don’t need to stress over 6 months of waiting to have another mammogram/ultrasound. Thankfully, this test […]
Understanding Small Airways Disease: Symptoms, Causes, and Treatment Options
Even though my surgery is soon, I continue to have many doctor’s appointments. Thursday I had my first appointment with a pulmonologist. It’s important with Sjogren’s Disease that lungs are checked often. She was as thorough as anyone could be. She didn’t only want to know about my lungs, but all my other illnesses. Since […]
Home With A New Bone
Updated: Mar 18 I came home from the hospital on Friday afternoon. My Thursday morning surgery was successful. My talus bone had Avascular Necrosis and was dead throughout, and had to be removed. I had a 3D printed bone in a custom shape. The surgeon placed the new 3D bone where the original bone was located. […]
Recovery: Week 1
A week has passed and it hasn’t flown by. I’ve been getting a little better with the transferring. Sliding from one chair to the wheelchair has become a little easier, but it still exhausted me. I only get up to go to the bathroom, and when I get back to the sofa I’m out of […]
Recovery: Week 2
Week 2 became more relaxing as I felt more comfortable with transfers to-and-from my wheelchair. As I am stretched out on the couch I instinctively start to get up to pick up something across the room. Then I remember that I’m stuck on here. Hubby has been tremendous in coming to help as soon as […]
Recovery: Week 3
I’m a little behind with this series. It’s hard to remember all the good and bad experiences I’ve had in the last week. I saw my surgeon last week and he was very pleased with the healing progress. He removed the stitches and told me to start wearing the boot again. He said that on […]