2025

Another week traveling too many miles has left me feeling very swollen. We drove five hours each day so that we could see my sweet grandsons. My husband gets extremely worn out and I get in serious pain. The first morning home was the worst. I couldn’t walk without serious pain in my ankle and […]

My surgery has been postponed. Unfortunately, I developed some infections on different places on my body. My GP felt that it was not smart to have surgery in my condition. So, my surgery will be one month from now. It’s kind of depressing because this will push my recovery forward into the spring season. This […]

Sometimes, going to appointments can be so confusing! My ultrasound appointment was not what I thought it would be. I feared that the rash on my breast might be Inflammatory Breast Cancer. When my GP saw it, she immediately suggested that I get it scanned. I’ve been getting mammograms for many years. Because of dense […]

​ Today was ridiculous! I had two out-of-town appointments, which started earlier than I like. My goal is to always to get afternoon appointments, because it is so hard for me to get going in the morning. I took this appointment because the office wanted to rearrange things because of heavy snow. Today was freezing, […]

Rare Disease Day is a day that is exciting to me, because there is such little knowledge of rare diseases in the United States. A rare disease has many definitions, but the most important one to me is that rare disease’s get no research. Without research, there can be no chance of breakthrough treatments. Those […]

I have had a very interesting past few days. I had a breast biopsy, even though the doctor told me that it was probably fine. But, probably isn’t something I can live with. I have enough problems, and I don’t need to stress over 6 months of waiting to have another mammogram/ultrasound. Thankfully, this test […]

Even though my surgery is soon, I continue to have many doctor’s appointments. Thursday I had my first appointment with a pulmonologist. It’s important with Sjogren’s Disease that lungs are checked often. She was as thorough as anyone could be. She didn’t only want to know about my lungs, but all my other illnesses. Since […]